A few days ago I wrote a blog post in my head, whilst lying in bed fighting through a terrible pain flare. I had a flow of words and feelings and no way of putting them to paper. It was frustrating.
Those are the days I hate, the days of incapacity. My mind fires at a million rates but I am confined to the broken body I am trapped within. Too tired or in too much pain to move, or worse both.
There is some light though. Last week I went for an assessment of needs through student finance, in order to provide me with equipment to help my studies. I was amazed and humbled by the options open to me! I still can’t quite believe it and the changes that it will bring to my life. So maybe those days won’t be quite so dark in the future and I won’t be so trapped by my condition. Only time will tell.